March 10th, 2009 by admin
One of the biggest questions we had when Jamie was first diagnosed with celiacs disease was ‘Should the whole family go gluten free?’ And it is a question that must be asked in any family where one member is diagnosed with celiacs.
Certainly there are advantages to this option: equally there are disadvantages. It is a question [...]
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February 26th, 2009 by admin
When your child is first diagnosed with celiacs disease, one of the biggest questions is ‘Should the whole family go gluten free?’
Certainly there are advantages to this option: equally there are disadvantages. It is a question that needs discussing and working through,preferably as a whole family, as everyone is affected, the earlier the better.
The first [...]
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January 28th, 2009 by admin
Having written about Jamie’s gluten free day last Wednesday, I did get to thinking about the impacthis celiac disease, and gluten free diet has on me!. So here is a day in the life of my celiac child from the point of view of the one who feeds him.
Early morning: I’m packing up the lunch [...]
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January 25th, 2009 by admin
I mentioned the other day that Jamie keeps getting tummy-aches, despite the fact that I’m sure he is not having any gluten. I kept a food diary for two weeks and send it to the Paediatric Dietician at the hospital.
She rang back the other day and said that she couldn’t see any reason for the [...]
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January 15th, 2009 by admin
Jamie is getting tummyaches again. I’m sure he is not getting any gluten (and if he is occasionally getting cross contaminated, it can’t be this regularly). His last blood tests showed he wasn’t getting regular gluten.
So why he tummyaches? They are short but very sharp, and he’s getting them three or four times a week. [...]
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January 8th, 2009 by admin
Coeliac UK (don’t ask me why we have to add another letter to ‘celiac’ over here!!) held its first research conference in London on December 3rd for scientists and researchers to network and report back on research they are doing at the moment.
The most exciting development, I thought, was the research being done to find [...]
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November 23rd, 2008 by admin
Celiac? Live in Utah?
UNIVERSITY RESEARCHERS SEEK FAMILIES WITH CELIAC DISEASE/DERMATITIS HERPETIFORMIS HISTORY
Individuals that have been diagnosed with Celiac Disease are being sought for a study to identify factors associated with the development of Celiac Disease. The goal of the study is to find genes that may predispose individuals and their relatives to develop the condition. [...]
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November 22nd, 2008 by admin
Who says that the celiac child can’t do anything they put their mind to doing?
Before Jamie was diagnosed with celiac disease, when he spent his days lolling around the house with no energy whatsoever and permanent tummy ache, I did wonder if he would ever really be right again. Four months after the celiac disease [...]
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October 13th, 2008 by admin
“Will I get a gluten free birthday cake?” was pretty high on Jamie’s list of concerns, having been disgnosed with celiac disease just a month before his ninth birthday. I spent a few evenings searching the internet for a gluten free birthday cake before deciding to just get on with it! So, first in the series [...]
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October 8th, 2008 by admin
After the trauma of his biopsy, Jamie started straight away on a gluten free diet. His tummy aches had been so bad that it was a relief to stop feeding him food that was effectively poisoning him and we didn’t need to wait for an official celiac disease diagnosis. It was then that the implications [...]
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